Latest News & Highlights from the Canadian MPN Research Foundation

cmpntexture.jpg

Latest News & Highlights

CMPNRF In The News

Executive Director Cheryl Petruk speaks with Montreal Now [click play on the right to listen] & the Community Radio Exchange's Cam Wells [listen here] about the new MPN Genie App. 

MTLNOW - APRIL 15 - Cheryl Petruk
00:00 / 06:13

Webinars from the Canadian Hematology Society

The Canadian Hematology Society has two upcoming webinars which are offered free to CHS members:

May 18th  12:00-1:00 PM EST - International Perspectives in CLL Management.  Presenters: Dr. Peter Hillmen (UK) and Dr. Carolyn Owen (Canada) . REGISTER

June 3rd from 12:00-1:00 PM EST - Clinical Cases to Enhance Knowledge – For Patients with Chronic Lymphocytic Leukemia. Presenters: Dr. Sue Robinson, Dr. Chai Phua and Dr. Nicole Laferriere. REGISTER

New Clinical Trial

The SURPASS ET Study which will be opening soon at Princess Margaret. This is a phase 3 randomized study of P1101 (ropeginterferon alfa-2b) vs. anagrelide for second line treatment of essential thrombocythemia.

 

Key inclusion criteria are:

 

-          High-risk ET ( >60 years and/or prior thrombosis/hemorrhage)

-          Resistance/intolerance to hydroxyurea

-          Platelets > 450, WBC > 10

-          Patients can have received prior interferon or anagrelide, as long as they do not have resistance, intolerance or other current contraindications

 

 

Please speak to your hematologist or oncologist if you think you may be eligible.

Cure "Speaking Out" Video Series

The Cure Today Speaking Out Series features a range of topics including how MPN patients can advocate for themselves. Find the entire series here

The MPN Genie App

Our new Genie app was announced at the Annual Doctor's Roundtable. The app will facilitate symptom management and patient/HCP communication, and is expected to go live in early 2022! 

We're on Twitter

CMPNRF is on Twitter! Follow up for news and resources here or scroll our live feed below.

MPN Genie Webinars

To support patients and health care practitioners in making the most of the MPN Genie, a series of webinars will be launched to cover the basics of using the app, starting with our patient webinar, being offered at two different time options. Advance registration required.

 

May 28, 2022, 15:00 Eastern Time (US and Canada) - click here to register in advance.

OR

May 30, 2022, 15:00 Eastern Time (US and Canada) - click here to register in advance.